January 1st
Happy New Year to you all and lets hope a better year for me and any one else who had a rough one in 2015. Saying that I think 2014 was worse for me. 2015 was just like the tail end of it all.
Good news as well--- Our Cuckoo know as Colin was not working right last year. I said he had bird flu. Well after a trip to the clock man who said I can't fix him, no parts. He has recovered all on his own and now is working like new again. Strange, I still think he had bird flu.
Colin the cuckoo.
A quite day for me after getting back from Lindsay's. (looking after the children last night.)
2nd
A lot of pain in my right arm and wrist, not sure if its CARPEL TUNNEL or the RSD. The pain radiates from my shoulder so could even be coming from there. Numbness and tingling as well.
4th
Nurse for B12 injection and Doctors for check up and advice. The B12 hurt a lot and made me feel very light headed. I asked the Doctor about ALEDRONIC ACID as the dentist was a bit worried about my teeth. I am to carry on with it as now is an important time for my OSTEOPOROSIS. Stopping it could be bad for me. The risk to my teeth is far less than the one to my bones. After all he said it's quite rare to be affected by the drug. So is RSD to a point!!!
Looking after Ben and Emmi tonight. (Children two doors away) They were very good, so an easy night.
5th
Acue --- We sat and talked quite a bit today. I have thought for a while that the treatment has bean less effective. Working better at times than others. After consulting the tutor we have all agreed to go back to basics. Martin always said less is more. Just twelve needles total today. Four in each lower leg and four in my upper back and shoulders. After the needles were removed from my right leg, there was a lot of pins and needles and tingling. I then had a deep massage on my shoulders and upper back. Painful but soothing at the same time.
Later my shoulders and back felt a lot lighter and looser.
6th
Pilate's today-- first one of the year, still the same class for now. The session went well, a few new moves mixed in with the old. An enjoyable session.
Arm still very painful and numb at time with shooting pains, white fingers too. Very tired later.
8th
Age UK-- again another first for this year. Sheila was there but not Angela. Slow to start with, but it soon changed and we were very busy. I managed to burn my finger on the water boiler. A blister came up straight away, sore. We were still serving meals at two thirty, a couple came in and asked for fish and chips and a puddings. They were lucky they got some as we usually stop serving meals at two. The man said it was the best apple crumble he ever had and thanked Gwen (Chef). A few awkward customers as well today. I did not leave till gone three o'clock.
A bit of shopping then home about five. Shoulder and back feels a bit sore today. Sometimes the after affects of the Acue and the massage. My neck feels better no shooting pains or spasms as yet.
9th
In town with Lindsay and Jamie-Lee we are getting her some new shoes. Clarke's did not have much to show her in her size. We ended up with a pair of trainers very nice, but shoes would have bean better choice. Jamie-Lee did like them a lot and will wear them probably more than school type shoes. Lindsay really wanted a pair suitable for Nursery as she is starting next week. Hopefully she can get some else where.
10th
The first time we have seen sun for ages. A colder day but a lot better than the damp stuff we have bean having for a while. I was going to have have Jay-Jay and Jamie-Lee while Tommy-Lee was playing football at Skegness. The match was cancelled due to a flooded pitch. So a quite day doing ironing and Blog and other non interesting bits. Bathed Summer so she looks very pretty and so fluffy and white.
Summer looking a lot cleaner, but not for long.
Lindsay managed to get Jamie-Lee a pair of shoes for school. She likes these as well.Cooking tea roast beef and all the bits. Looking forward to this.
11th
First day at nursery for Jamie-Lee all suited up ready.
Jamie-Lee looking very excited.
Jay-Jay and Tommy-Lee on their first day back to School in September.
Back to rain and dull again very mucky on the common. Yes Summer is not as clean now but she is happy.
My finger is infected, swollen and red. I scraped it on a shelf and a lot of yellow stuff and blood came out. Went down a bit afterwards.
12th
Very mucky and wet on the common today. Summer loves the rain and big puddles which she runs though. She gets very wet and muddy.
Day out today, at the pictures with Angela, we are going to see the Danish Girl. a story about a man in the wrong body.
The film was very good and I enjoyed it. Quite a bit of pain and spasms during it though. A few extra tablets calmed everything down.
After the pictures I went back to Angela's house and stopped there for a while. Had tea there as well Mince and gravy with potatoes and carrots very nice too. Played with her cat Saba, very vocal she was but cuddly too. About nine o'clock Angela brought me home. A good day. Thank you Angela.
13th
Pilate's a good session a lot more standing which I like. Finger is still swollen but the infection I think has gone. I don't really want to go to the Doctors about it.
14th
Cold wet and dismal. A bit of snow fell as well. The first of this winter. Cleaning up today and not much else.
15th
Age Uk back to the full gang-- Sheila, Angela and me. A busy day but more snacks and drinks than full meals. Saying that, we did sell out of braising steak and just about all the apple pie went. I had some it was so good.
A bit of shopping in town then home. The nights are getting lighter now so I just about get home in the light.
16th
Got all the young uns today, so a busy day ahead playing. Lindsay is out for the day. Jay-Jay went to meet a friend so a little bit nervous till he came back home, on time as well. This is the first time he has gone out on his own while in my care. Tommy-Lee and Jamie-Lee were good and played together, hide and seek plus dolls games just about everything. Jamie-Lee goes on her Ipad as well, a good thing for her when she is getting tired. She watches a lot of roll play things.
A good day the children were entertaining and energetic, ate their dinner and I enjoyed it all.
Very tired later and aching a lot but happy. Some snow fell about 2am
17th
Sorting out my DVDS and general tidy up. My shoulder and arm are so bad today. Shoulder numb but even so a lot of pain there. Elbow is as bad, shooting pain up and down my arm. Oh the joys of RSD and mine is not as bad as some. Also the pain does not calm down no matter what I take. With this type of pain its either hurting like hell or hardly at all, no middle ground.
18th
I had a check up by a very nice tall, handsome Scotch man called Ryan who did a house call. He asked me about my seizures and my general health. Taking my blood pressure and various tests. My saturation levels were 100% -- he said he never had this level before. Everything else checked out good. He suggested I might have a life line pull cord for my seizures, not so keen I said if they start up again I will then. No seizures since May last year. This visit is to help me keep out of hospital.
Arm and shoulder no better, I was asked what the pain is like-- here goes-- bee sings, nettle sings tooth ache, sensitivity off the scale, electric shocks all at the same time plus my body going into spasm at the slightest touch.
The pain just decides to come and go when it feels like it. One minute going crazy the next calm down to my normal levels. If I walk with my arms folded instead of having them hanging down this seems to stop the nerve pain a bit, some of the time. This tends to make my shoulders hurt though. I have given over trying to understand it and just go with the flow. I think after eleven years I am not doing too bad.
20th
Arm back to my normal now, I am so pleased. I was talking to Angela about running, and said-- its killing me not bean able to run, but on the other hand it will probably kill me when I start again.
Pilates a good session I enjoyed it. Now a lot of the members do more stood up, than sitting. So good to see how everyone has come along and got stronger. Shows Pilates works. I know it does I have doing it for since May 2009 and enjoying it too.
My finger is infected, swollen and red. I scraped it on a shelf and a lot of yellow stuff and blood came out. Went down a bit afterwards.
12th
Very mucky and wet on the common today. Summer loves the rain and big puddles which she runs though. She gets very wet and muddy.
Day out today, at the pictures with Angela, we are going to see the Danish Girl. a story about a man in the wrong body.
The film was very good and I enjoyed it. Quite a bit of pain and spasms during it though. A few extra tablets calmed everything down.
After the pictures I went back to Angela's house and stopped there for a while. Had tea there as well Mince and gravy with potatoes and carrots very nice too. Played with her cat Saba, very vocal she was but cuddly too. About nine o'clock Angela brought me home. A good day. Thank you Angela.
13th
Pilate's a good session a lot more standing which I like. Finger is still swollen but the infection I think has gone. I don't really want to go to the Doctors about it.
14th
Cold wet and dismal. A bit of snow fell as well. The first of this winter. Cleaning up today and not much else.
15th
Age Uk back to the full gang-- Sheila, Angela and me. A busy day but more snacks and drinks than full meals. Saying that, we did sell out of braising steak and just about all the apple pie went. I had some it was so good.
A bit of shopping in town then home. The nights are getting lighter now so I just about get home in the light.
16th
Got all the young uns today, so a busy day ahead playing. Lindsay is out for the day. Jay-Jay went to meet a friend so a little bit nervous till he came back home, on time as well. This is the first time he has gone out on his own while in my care. Tommy-Lee and Jamie-Lee were good and played together, hide and seek plus dolls games just about everything. Jamie-Lee goes on her Ipad as well, a good thing for her when she is getting tired. She watches a lot of roll play things.
A good day the children were entertaining and energetic, ate their dinner and I enjoyed it all.
Very tired later and aching a lot but happy. Some snow fell about 2am
17th
Sorting out my DVDS and general tidy up. My shoulder and arm are so bad today. Shoulder numb but even so a lot of pain there. Elbow is as bad, shooting pain up and down my arm. Oh the joys of RSD and mine is not as bad as some. Also the pain does not calm down no matter what I take. With this type of pain its either hurting like hell or hardly at all, no middle ground.
18th
I had a check up by a very nice tall, handsome Scotch man called Ryan who did a house call. He asked me about my seizures and my general health. Taking my blood pressure and various tests. My saturation levels were 100% -- he said he never had this level before. Everything else checked out good. He suggested I might have a life line pull cord for my seizures, not so keen I said if they start up again I will then. No seizures since May last year. This visit is to help me keep out of hospital.
Arm and shoulder no better, I was asked what the pain is like-- here goes-- bee sings, nettle sings tooth ache, sensitivity off the scale, electric shocks all at the same time plus my body going into spasm at the slightest touch.
The pain just decides to come and go when it feels like it. One minute going crazy the next calm down to my normal levels. If I walk with my arms folded instead of having them hanging down this seems to stop the nerve pain a bit, some of the time. This tends to make my shoulders hurt though. I have given over trying to understand it and just go with the flow. I think after eleven years I am not doing too bad.
20th
Arm back to my normal now, I am so pleased. I was talking to Angela about running, and said-- its killing me not bean able to run, but on the other hand it will probably kill me when I start again.
Pilates a good session I enjoyed it. Now a lot of the members do more stood up, than sitting. So good to see how everyone has come along and got stronger. Shows Pilates works. I know it does I have doing it for since May 2009 and enjoying it too.
21st
A sharp frost very cold. On the common I had on two pairs of gloves, both hand knitted by me. The outer one are mittens made from Mohair, with the wool ones on underneath. I had warm hands all the way round. Something I don't usually have because I have bad Raynard's. If I need to clean up after summer I still keep warm because of the under gloves. Good at last warm hands. So nice too.
22nd
My friend Bev is here on a short visit. Very good to see her, We exchanged Christmas presents.
Caught up on all the things since last time. All too soon it was time to go to Age Uk we walked into town together. Raining and cold today.
Age UK was quite today I think the rain has put some people off. A good day and everyone seemed to be in good spirits.
23rd
A lovely day warm sunny-- spring like day. At last some nice weather. A few bulbs are coming up now and my first snow drops have properly flowered. They have bean nearly there for weeks. These are the first ones I have another lot that flower, later they are smaller and wild ones. Acquired last year. Maybe Spring is on the way???
26th
At Lindsay in the afternoon looking after Jay-Jay and Jamie-Lee. Jay-jay is off School with ear ache and Jamie-Lee just goes in for the morning. Played with all the toys and had a good, but tiring day. Jamie-Lee is quite demanding and wants my attention all the time.
The Cannabis broadcast I listened to was very good and informative. Medical Cannabis helps a lot of people with things from depression to Cancer. A lot of MS patients use it. I take a lot of strong medications and so will a lot of you, some of the side affects are as bad as the pain itself. Cannabis can help chronic pain also seizures. There are not usually any major side affects.Trouble is its not legal in this country, as yet. This is something to think about.
Today is a year since, my friend Sonia passed away. I spent six weeks in hospital with her. Without her, life in that ward would have bean very dull. I know a lot of time I was unconscious but towards the end of my time there she really did help me get through it all. Thank you my friend.
27th
Lindsay was here when I got back from the common with Summer. Jamie-Lee too as she was up a lot of last night with ear ache, so no nursery today.
Pilates a very good session. Jo has worked hard with the other members and most stand all the time to do the moves. When the class first started hardly anyone stood up. Everyone said they feel a lot fitter and more importantly looser.
29th
Age UK again today, we are having a refit over the weekend and reopening on Monday with a new name. I put in two suggestions-- "Welcome Cafe" and "Park it" the cafe in on Park Street. Park it, as park the car and park your bum. I will know on Monday if any were chosen.
Not a good day for me as I forgot to take my MORPHINE tablet, (10am usual time.) I started to feel very strange about eleven thirty to twelve. Hot/cold pain weird head, shaking, speech wrong- soon I realized I had gone into withdrawal. I have bean a MORPHINE addict for years and my body craves it. I always carry a 50ml bottle of OROMORPTH/OXYNORM with me. I had nearly all of that then it was a waiting game to see how effective it would be as I usually have this as well in bad pain days.
Lucky it helped a lot I finished off the bottle and soon started to feel normalish again. Still very shaky. I had to have help with pouring out water and lifting things.
This is one of the things that people on addictive medication have to put up with. I know people take this just for kicks and try to get off it at a later stage but find it very hard. I watched a documentary once before I took MORPHINE and did not really believe the suffering and pain that you go through to get off it. COLD TURKEY as its called. That was up till I came off it in May 2009 also 2006 both times had to go back on it because of PAIN. 2006 because of FIBROMYALGIA.I know its not a good drug to be on long term but it works very well.
Later on, after arriving home I did feel better, but a strange not here feeling going on. Fair bit of pain every where as well.
30th
When I told Andrew my son how much MORPHINE I had taken he was very concerned. I had no choice, hopefully this will not happen again, but somehow I think it will. I would love to get off MORPHINE for good, but I need to replace it with something safer that does the same job or better and does not land me in trouble with the law..
A quite weekend no children-. well Tommy-Lee was here for an hour or two. Other wise not too much going on. I still feel a bit off it and with the far away feeling. Rain Sunday as well most of the day. Summer and I got wet on the common.
Tommy-Lee had a football match and drew 0-0. Paul took them and stayed to watch and said it was a good game.
Sorry this Blog was a bit later than normal going out, I sort of had a unscheduled stop at the Hospital. Doing better now. More about that in February Blog.
A lovely day warm sunny-- spring like day. At last some nice weather. A few bulbs are coming up now and my first snow drops have properly flowered. They have bean nearly there for weeks. These are the first ones I have another lot that flower, later they are smaller and wild ones. Acquired last year. Maybe Spring is on the way???
The little snow drops making there way into the world.
Now my knees are bad and swollen. Pain levels high here but at least my arms are better.
Summer loved her walk on the common with it being a good day we were out longer. She managed to stay fairly clean as well.
Went to see my Mum and Dad in the afternoon. I miss them both so much, it has bean just eleven years since Dad went, more for Mum. Summer came too a lot of walking for her. About three miles or more plus the common as well. We can go a lot of the way on the common so Summer gets a good walk.
24th
A quite day today just doing a few jobs and writing this Blog. Later I am going to listen to a Broadcast from the Cannabis Health summit- in California talking about how cannabis can help chronic pain and seizures. Could be interesting I think-- I will let you know.
26th
At Lindsay in the afternoon looking after Jay-Jay and Jamie-Lee. Jay-jay is off School with ear ache and Jamie-Lee just goes in for the morning. Played with all the toys and had a good, but tiring day. Jamie-Lee is quite demanding and wants my attention all the time.
The Cannabis broadcast I listened to was very good and informative. Medical Cannabis helps a lot of people with things from depression to Cancer. A lot of MS patients use it. I take a lot of strong medications and so will a lot of you, some of the side affects are as bad as the pain itself. Cannabis can help chronic pain also seizures. There are not usually any major side affects.Trouble is its not legal in this country, as yet. This is something to think about.
Today is a year since, my friend Sonia passed away. I spent six weeks in hospital with her. Without her, life in that ward would have bean very dull. I know a lot of time I was unconscious but towards the end of my time there she really did help me get through it all. Thank you my friend.
27th
Lindsay was here when I got back from the common with Summer. Jamie-Lee too as she was up a lot of last night with ear ache, so no nursery today.
Pilates a very good session. Jo has worked hard with the other members and most stand all the time to do the moves. When the class first started hardly anyone stood up. Everyone said they feel a lot fitter and more importantly looser.
29th
Age UK again today, we are having a refit over the weekend and reopening on Monday with a new name. I put in two suggestions-- "Welcome Cafe" and "Park it" the cafe in on Park Street. Park it, as park the car and park your bum. I will know on Monday if any were chosen.
Not a good day for me as I forgot to take my MORPHINE tablet, (10am usual time.) I started to feel very strange about eleven thirty to twelve. Hot/cold pain weird head, shaking, speech wrong- soon I realized I had gone into withdrawal. I have bean a MORPHINE addict for years and my body craves it. I always carry a 50ml bottle of OROMORPTH/OXYNORM with me. I had nearly all of that then it was a waiting game to see how effective it would be as I usually have this as well in bad pain days.
Lucky it helped a lot I finished off the bottle and soon started to feel normalish again. Still very shaky. I had to have help with pouring out water and lifting things.
This is one of the things that people on addictive medication have to put up with. I know people take this just for kicks and try to get off it at a later stage but find it very hard. I watched a documentary once before I took MORPHINE and did not really believe the suffering and pain that you go through to get off it. COLD TURKEY as its called. That was up till I came off it in May 2009 also 2006 both times had to go back on it because of PAIN. 2006 because of FIBROMYALGIA.I know its not a good drug to be on long term but it works very well.
Later on, after arriving home I did feel better, but a strange not here feeling going on. Fair bit of pain every where as well.
30th
When I told Andrew my son how much MORPHINE I had taken he was very concerned. I had no choice, hopefully this will not happen again, but somehow I think it will. I would love to get off MORPHINE for good, but I need to replace it with something safer that does the same job or better and does not land me in trouble with the law..
A quite weekend no children-. well Tommy-Lee was here for an hour or two. Other wise not too much going on. I still feel a bit off it and with the far away feeling. Rain Sunday as well most of the day. Summer and I got wet on the common.
Tommy-Lee had a football match and drew 0-0. Paul took them and stayed to watch and said it was a good game.
Well a non eventful start to the year, so that can only be good. Hope it keeps up. Best wishes to you all and I hope your new year is going good. Love as always Gill.
Sorry this Blog was a bit later than normal going out, I sort of had a unscheduled stop at the Hospital. Doing better now. More about that in February Blog.
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