June, Wednesday 2nd
Pilates- I look round and I think people have progressed a lot more than I have, I am finding a lot of the moves hard. Some I have not done before. The two months off did let the others get a long way in front. I had a word with Joanne she said I am doing fine, obviously some of the others have bean coming longer so they should be better. They have not got the health problems I have. I think I am a bit down.
3rd
I have bean in the garden a lot of the day. The weather is very hot again.
Pete is round for another run - same place, same time. I ran a bit slower this time as it is so hot. Both knees hurt and my RSD foot is spasming it hurts when I put my foot to the floor. After a while my foot stopped hurting when it realised it was not going to get any attention. We ran for thirty one minutes. I did not stop once, so I was so pleased. I think slower is better but if I can keep the running up the speed will come back. Pete was pleased I did so well.
4th
Physio-
All is well with Wietse I told him that my legs have bean burning. I also let him know about extra pain I am getting more pain if some thing hurts on the left side, my right side RSD will join in this is something that has not happened much up till now. Oh the joys of RSD.
5th
The boys and Lindsay are year the day is very warm so they are in the garden.
As I was putting up the small slide I pushed down and felt something go in my ribs at the front so,so painful. I think I might have cracked them or at least bruised them.
Sandy is having a good day following them a round. She seems a lot better today almost too good.
6th
Today Sandy is just the opposite really bad she is having trouble walking and has a dazed look on her face. Late Sunday night I think she had a mini stroke, or fit. Her legs are very stiff. she does not seem to know where she is very unsteady on her feet. Her appetite is good though. I am giving her lots of extra cuddles.
7th
Sandy is not too bad . She has bean for a little walk. She is panting a lot and still has got the dazed look about her. I don't think her sight is good as she keeps walking into things. Later on in the day she got worse, that night she had another small fit and fell into her water bowl. I have decided to spend the night with her as I don't think she knows where she is. All night she is panting and shaking sometimes crying. I sit and hold her and try to comfort her but she is not good. I have not slept all night but somehow don't feel tired. I think this is the end for us both.
8th
Sandy is worse Paul and I are taking her to the vets. She had a big fit about 8am. Her little neck is stiff and her eyes are staring at me I don't think she knows where she is, also I think she is blind. Her breathing is so bad. We both know that this will be her last trip to the vets.
At the vets she was given her last treatment she passed peacefully into sleep she had gone.
I have lost the best little friend I ever had, what am I going to do now. We have laid her in her basket covered up she just looks like she is asleep at peace after all the pain.
9th
Sandy is going to be buried in the garden with her favorite toys. Wayne came from Halifax to say goodbye we all stood at the side and cried. She will be missed by a lot of people as she was well known.
11th
Physio - Wietse knew something was wrong even before I told him he gave me a hug and a Wietse special talk. I told him about my ribs as they have bean very painful a lot worse than the weekend. He exclaimed me and he thinks they are broken. He told me about every hour or so to hug my self and deep breathe so the ribs mend correctly, this is painful but I will do it. I have bean taking extra extra pain relief, also using BIO FREEZE. I feel really bad and in a lot of pain. My short spell of running has come to an end for now so has ridding my bike. I told Wietse that every time I have a good spell things always come tumbling down.
I am missing my little baby Sandy, every where reminds me of her and people are asking where she is.
14th
Early hours of the morning my stomach swelled up and I felt very sick I thought it was the stress of the last few days. Bed at 3am but not for long as I started wrenching as to be sick not good with broken ribs. This went on all night till I was exhausted, I was not sick but all the same kept wrenching. I am in pain at the back of my ribs as well as the front now. I could hardly move.
16th
Doctors today for update and tablets. He says I most likely have broken my ribs as Wietse thought and also wrenched them from 14th. He did not give me any thing as I already have enough pain relief all ready. When I breathe they crack and move they hurt a lot.
18th
Physio Wietse could not believe what extra I had done to my ribs. He told me to be careful as they can get more damaged. Today I feel very weak and tired, Wietse thinks its something going round as he has not felt right either. While football was on I went for a lay down and actually slept for a while.
Love Gill.
RSD blog by Gill Pyrah. The RSD (CRPS) was caused by an accident whilst running in July 2004. This now has be come a chronic, painful condition which I have to live with each and every day. Updated regularly, so please feel free to add to your favourites and visit often!
Very Good or Very Bad
To start with an apology as I have not updated for a while, I have bean very busy in the garden as everything is growing so fast. Also my little dog has not bean too good.
21st
Since my run with Pete things have bean good. Obviously I felt it in my joints and muscles but no more than any one else you have not run for a while. My RSD is at the moment is either very good or very bad when I get pain it is more severe than usual but is lasting less time.
Physio- Wietse put in the usual needles and we discussed what had bean going on. I told him about the run he was nearly as happy, as I was. He advised me to not get too excited and to listen to my body, but he was well pleased. At the moment I feel the best I have felt for a long time, may be this is the start of better things to come I hope so as I think I deserve it now.
After taking out the needles both my ears bled and hurt a lot.
23rd
I am in the garden it is red hot, the greenhouse is even hotter all the tomatoes have now bean planted at last. I am sun burnt on my shoulders and feet my RSD foot does not like it at all, the pain is burning and making my foot go into spasms. Over night it felt like it was on fire but the burn on my feet is only slight. I think the RSD reacts the same way to sunburn as it does to ice. My ears are bruised from the needles from yesterday, and are quite painful.
24th
Doctors today for tablets and to update him on any changes.All tablets are the same apart from BUSCAPAN which is now stopped. I will hopefully try to reduce the morphine next time as he said it is too soon yet, as he does not want me come of too fast, but I have every confidence I can as I have be for. He will get in touch with ENT as I still have not an appointment it looks like it has bean forgotten like the urology one. My bladder is not a lot better as yet but the Doctor said it can take eight weeks for it to calm down after a catheter has bean in for a time. Other wise he is pleased with me. He said, like Wietse, the running is good news.
25th
Another run with Pete. This time it is at Whisby nature park as it is the running clubs handicap race. A lot of people were surprised to see me in my running gear one said I must have bean doing some secret training. I said no just sheer determination and my foot able to move better now, after the spasums epasode in hospital. The weather has changed its very cold now. We went round the park for fifteen minutes then Pete did his race I could not take part as it is too far - 8KM, but watching was good but so cold. I borrowed some of the coats people had left to put on after they had finished running.
After the race (Pete had a good run) we did the remaining fifteen minutes. The run on the whole was harder than the last one to Boultham Park but the terrain was undulating so a bit of a challenge, may be too much, also the cold was taking my breathe away. On the whole I think I did quite well.
26th
Pilates - the first time since hospital. I found it quite hard as everybody else had moved on a step but with Joanne guideness I did reasonably well. My joints are very stiff and my bones cracked. When Joanne mentioned bone by bone for one of the moves my brain got the words of the song, leg bone connected to knee bone, I could not get it out of my head and found it hard to consecrate. On the whole it went Ok. The chips were good after the session.
28th
Physio again - I told Wietse about my bruised ears it was still a bit blue so he could see for himself. He said it was because the needles were very tight in and when removed they bled causing bruising. He did not put needles there this time. He was very pleased about the last run with Pete. I told him I felt that one more than the previous one and had felt my muscles pulling but not too painful.
After physio I did some shopping but walked too far and was in pain. I think it is weird that I can run for a short way with not too much pain, but it hurts when I walk for the same distance or less in most cases.
31st
Today I am having a easy day as I have a lot of joint pain and feel not too good. I feel that I need this as the last week has bean so busy for me, it is nice almost to be in discomfort from activity instead of RSD related.
Well thats just about all this time as you can se a good month mostly so may be its my time now. I do hope so.
I hope things are reasonable for you all and painfree as possible.
Love Gill
21st
Since my run with Pete things have bean good. Obviously I felt it in my joints and muscles but no more than any one else you have not run for a while. My RSD is at the moment is either very good or very bad when I get pain it is more severe than usual but is lasting less time.
Physio- Wietse put in the usual needles and we discussed what had bean going on. I told him about the run he was nearly as happy, as I was. He advised me to not get too excited and to listen to my body, but he was well pleased. At the moment I feel the best I have felt for a long time, may be this is the start of better things to come I hope so as I think I deserve it now.
After taking out the needles both my ears bled and hurt a lot.
23rd
I am in the garden it is red hot, the greenhouse is even hotter all the tomatoes have now bean planted at last. I am sun burnt on my shoulders and feet my RSD foot does not like it at all, the pain is burning and making my foot go into spasms. Over night it felt like it was on fire but the burn on my feet is only slight. I think the RSD reacts the same way to sunburn as it does to ice. My ears are bruised from the needles from yesterday, and are quite painful.
24th
Doctors today for tablets and to update him on any changes.All tablets are the same apart from BUSCAPAN which is now stopped. I will hopefully try to reduce the morphine next time as he said it is too soon yet, as he does not want me come of too fast, but I have every confidence I can as I have be for. He will get in touch with ENT as I still have not an appointment it looks like it has bean forgotten like the urology one. My bladder is not a lot better as yet but the Doctor said it can take eight weeks for it to calm down after a catheter has bean in for a time. Other wise he is pleased with me. He said, like Wietse, the running is good news.
25th
Another run with Pete. This time it is at Whisby nature park as it is the running clubs handicap race. A lot of people were surprised to see me in my running gear one said I must have bean doing some secret training. I said no just sheer determination and my foot able to move better now, after the spasums epasode in hospital. The weather has changed its very cold now. We went round the park for fifteen minutes then Pete did his race I could not take part as it is too far - 8KM, but watching was good but so cold. I borrowed some of the coats people had left to put on after they had finished running.
After the race (Pete had a good run) we did the remaining fifteen minutes. The run on the whole was harder than the last one to Boultham Park but the terrain was undulating so a bit of a challenge, may be too much, also the cold was taking my breathe away. On the whole I think I did quite well.
26th
Pilates - the first time since hospital. I found it quite hard as everybody else had moved on a step but with Joanne guideness I did reasonably well. My joints are very stiff and my bones cracked. When Joanne mentioned bone by bone for one of the moves my brain got the words of the song, leg bone connected to knee bone, I could not get it out of my head and found it hard to consecrate. On the whole it went Ok. The chips were good after the session.
28th
Physio again - I told Wietse about my bruised ears it was still a bit blue so he could see for himself. He said it was because the needles were very tight in and when removed they bled causing bruising. He did not put needles there this time. He was very pleased about the last run with Pete. I told him I felt that one more than the previous one and had felt my muscles pulling but not too painful.
After physio I did some shopping but walked too far and was in pain. I think it is weird that I can run for a short way with not too much pain, but it hurts when I walk for the same distance or less in most cases.
31st
Today I am having a easy day as I have a lot of joint pain and feel not too good. I feel that I need this as the last week has bean so busy for me, it is nice almost to be in discomfort from activity instead of RSD related.
Well thats just about all this time as you can se a good month mostly so may be its my time now. I do hope so.
I hope things are reasonable for you all and painfree as possible.
Love Gill
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